“Primary SS is a multisystem disorder that does not behave as a single disease.”
*Recommendations for evaluation and diagnosis of extra-glandular manifestations of primary sjogren June 2022
https://pubmed.ncbi.nlm.nih.gov/35650656/
*IVIG NeuroSjogren’s July 2022
https://clinicaltrials.gov/ct2/show/NCT03700138
*Current & Future Therapies May 2022
*Rituximab Therapy 2014
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3618621/
*Low-Dose IL-2 Treatment April 2021
https://www.frontiersin.org/articles/10.3389/fimmu.2021.648408/full
*The Future?
https://www.cancer.gov/about-cancer/treatment/research/car-t-cells
*Trial UMC Utrecht 2020
https://www.umcutrecht.nl/nieuws/combinatie-van-geneesmiddelen-werkt-bij-sjogren
*New Treatment Guidelines 14 February 2018
/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5812283/
*Unconventional Treatment with Low-Dose Naltrexone
https://casereports.bmj.com/content/13/1/e232502
*Genetic aspects 2022
https://arthritis-research.biomedcentral.com/articles/10.1186/ar599
*Sjogren Advocate https://www.sjogrensadvocate.com
*Sjogren Foundation www.sjogrens.org
*Sjögren Europe
awareness month
*Nederlandse Vereniging Sjogrenpatienten www.nvsp.nl
*ReumaNederland
Sjögren, syndroom van
*Sjogren Syndroom 2022
https://pubmed.ncbi.nlm.nih.gov/36528400/
*European Studies 2022
*Review Patient Perspective Sjogren 2019
* Not all Sicca is Sjögren’s and not all Sjögren’s is Sicca January 2021
https://www.cureus.com/articles/45512-not-all-sicca-is-sjgrens-and-not-all-sjgrens-is-sicca
Products that make life easier
Sjogren’s Syndrome Symptoms: Products to Make Life More Comfortable
*Sjögren’s as rheumatoid arthritis or systemic lupus February 2016
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6281033/
*Systematic involvement February 2014
https://pubmed.ncbi.nlm.nih.gov/24162151/
*Autoimmune epithelitis 2013
*Dry Mouth
https://www.nhs.uk/conditions/dry-mouth/
*Salivary flow and ultrasonography May 2022
https://pubmed.ncbi.nlm.nih.gov/34672336/
*Parotid salivary sodium levels December 2021
https://pubmed.ncbi.nlm.nih.gov/34665704/
*Epithelial–immune cell interplay in primary Sjögren syndrome salivary gland pathogenesis 28 April 2021
*Fatigue in pSS June 2019
https://pubmed.ncbi.nlm.nih.gov/31250166/
*7 different forms of Fatigue
https://themighty.com/topic/sjogrens-syndrome/sjogrens-fatigue/
‘Sleep Hormone’ Melatonin Shows Promise in Sjögren’s Mouse Model
*Low Dose Naltrexone for fatigue
*Axial Articular Manifestations in Sjögren’s. July 2021
*Pain in Sjogren’s June 2015
https://pubmed.ncbi.nlm.nih.gov/26267000/
Back Pain at Night: When It’s a Sign of Ankylosing Spondylitis
*Neuropsychiatric syndromes October 2019
*Malmo Pots symptom 16 Sepbember 2022
https://onlinelibrary.wiley.com/doi/full/10.1111/joim.13566
Diagnosis
*Herpes zoster and the risk of Sjogren’s 14-10-2022
